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This is the journey of Susan as she embarks on her surgery. This should provide updates for friends and family during this time.
Susan is 27 years old and living with VHL syndrome. This is a rare, genetic disorder that affects one person in 32,000 in the world. There is no cure for VHL. According to one estimate, the cure will come about the year 2025, and it will come as a result of genetic study.
1 comment:
Can you email me the phone number to the hospital? My email address is freddieschild@aol.com.
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